Today we had our first appt. with Dr. Nelson, Jeremy was really scared he is afraid he will never walk again. I told him Dr. Nelson is a very good Dr. who will make his leg pain go away. Jeremy smiled. We got up today at 6 am no one slept good at all. Our appt. was at 8am we were only waiting for about 4 min before we meet Dr. Nelson. He answered all our questions examined Jeremy.
He told us Jeremy is pretty far along in the disease, he needs surgery very soon. We have 2 surgeries to choose from both have very good results.
1) triple pelvic osteotomy, 6 weeks in a cast no real movement then, When the cast is removed physical therapy is resumed.
2) external fixator, would be on 4-6 months with lots of physical therapy.
Ian and I know he needs the surgery Dr. Nelson told us to research both surgeries we are scheduled for surgery on or about Aug 30. Jeremy will be in the hospital for 3 day given everything goes as scheduled.
I feel good about this we are finally attacking this disease. I just want my son to be able to run, walk, jump and play without pain.
update: we decided to go ahead with the triple pelvic osteotomy and if need it use the ex fix as a back up.
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