May 4th

On May 4th it will be Jeremy's 2nd. year anniversary of finding out he has perthes. What a difference 2 years can make. He is no longer in pain, no longer has a limp and most of all he can run really fast. I remember it like it was yesterday. Dr. Rocha called me and told me Jeremy has been diagnosed with Legg-Calve-Perthes disease. I had never even heard of it. We felt so alone. I cried and didn't understand why him he is just a little boy. But by God's grace we were referred to see Dr. Scott Nelson. Jeremy had a very invasive surgery, but we don't regret our decision. Now you would never know Jeremy has perthes. The only time he complains of hip pain is when the weather changes. Dr. Nelson told us Jeremy would develop arthritis. My hope through this blog is that I can reach as many parents as possible, so they don't feel quite so alone.  We are very blessed!



Shortly after Jeremy was diagnosed with perthes disease




Right Before surgery

                                                            

During hospital stay



1 year after

Today

Disneyland

Jeremy finally got to have his family go with him.  I wanted to share the pics. We went March 25, 2013. Good times, good times. I wish things were still the same, I never got to share these pics with my Mom, she couldn't wait to see them. So I am sharing with all of you.

California Adventure we just got there heading for Cars land.

Waiting in line

Tuggie

Meme and Tuggie



So looks like they are up to no good

ahhh Jeremy got jumped :)



The usual suspects





Meme, Tuggie, Jeremy and Modi

It's always darkest before the dawn

So  March 27th Jeremy's grandma passed away. It has been pretty hard on all of us. My Mom was such an inspiration to us. Jeremy has been coping OK. I am a mess. My Dad has been staying with us, he cries a lot. I wish there was a way to make the pain go away. My Mom is our angel watching us from heaven.
I am even more committed now more than ever to volunteer my time and do missionary work . I am going to use the gift the lord gave, to help everyone I meet.

So this last weekend we decided to take my Dad and our families and go riding. I tell you my son  has no fear. He has only been riding three times on a little quad. But he decided he wanted to try a ATC and he did so awesome!!!!I just love this kid. Perthes cant keep him down.

Jeremy's next appt. with the most awesome Doctor in the world is June 3rd. I can't wait to see how much bone regrowth there is. Jeremy stopped doing his stretches after my mom passed away. I am hoping that he is still going to be as limber as he was back in January.

Jeremy doing his stretches

Jeremy has been doing his perthes stretches on and off for a little over a year now. When he first started them he could barely stretch his left leg, he would complain that it hurts tooo much.  I started letting him do the stretches on his own when he wanted about 7 months ago. These pics where taken Monday night. Crazy how limber he is now. Jeremy is so strong now I am so proud of him. When its really warm he can take his left leg stretch it, so that his heel is resting on his back.  My little man wants to learn to snow board now.  He wants to try jiu jitsu. This kid has no fear anymore. He has the heart of 20 men. Go to sleep in a lion's den. 

Jeremy's newest xray

On Oct. 28th Jeremy hurt his hip. He hopped off our couch to do his stretches with his dad landed wrong on his left leg screamed in pain, but he is OK. I iced his hip that night, the next day we went to see his Dr.  Jeremy pulled his muscle on his left leg. Bright side we got a new x-ray and I was told he has very  healthy looking bones! Yay!

Taken on Oct 29, 2012

Jeremy's appt. July 2nd with Dr. Nelson

Jeremy's appt. was really awesome. His Dr. said his hip looks great! yay!! I got a copy of all his x-rays. We go back in 6 months cant wait. My son is just so amazing! Love him. Here are the pics.

when we first found out

after the casts were removed

Dec.

March

most current x-ray


I think these other x-rays are from Jeremy's surgery.

Reflections

I am so grateful and so blessed that I have such a wonderful family. Today I am sitting at home thinking about this last year. Jeremy just amazes me everyday, he runs and jumps and is now riding a bike.  I have to thank Dr. Nelson so much for his wonderful knowledge, and skills as a surgeon. Everyday at the hospital I see so much misery and hopelessness from the patients, and I am reminded how lucky we are. Last week I got to hold a neonate that was 2 weeks early and I was filled with so much hope and faith, I thought I so could be a Pediatric nurse maybe use my experience with what happened to Jeremy but my dream is to be an OR nurse. I still need to get Jeremy's newest x-rays and post them on here,  I also want to show the girls at school his regrowth.

Jeremy turned 8 June 5th one of his presents.

Tonight..We are young...So let's set the world on fire...We can burn brighter..Than the sun  =o)