Reflections

I am so grateful and so blessed that I have such a wonderful family. Today I am sitting at home thinking about this last year. Jeremy just amazes me everyday, he runs and jumps and is now riding a bike.  I have to thank Dr. Nelson so much for his wonderful knowledge, and skills as a surgeon. Everyday at the hospital I see so much misery and hopelessness from the patients, and I am reminded how lucky we are. Last week I got to hold a neonate that was 2 weeks early and I was filled with so much hope and faith, I thought I so could be a Pediatric nurse maybe use my experience with what happened to Jeremy but my dream is to be an OR nurse. I still need to get Jeremy's newest x-rays and post them on here,  I also want to show the girls at school his regrowth.

Jeremy turned 8 June 5th one of his presents.

Tonight..We are young...So let's set the world on fire...We can burn brighter..Than the sun  =o)

A mayo Clinic video

I just found this you tube Video, it's from the Mayo Clinic fairly new from Jan 9.2012. Anthony Stans, M.D. of the Department of Orthopedic Surgery at Mayo Clinic discusses perthes disease. I didn't know  there is currently research being done on meds that may help.

March 8th appt with Dr. Nelson

Jeremy is doing really well. His latest appt. was really awesome. I was a little scared because Jeremy has been complaining about pain in his right hip. His latest x-ray shows bone regrowth in his left hip yay!! His right hip looks fine. We are so happy! Our next appt. is July 2nd. I am going to get a copy of the newest x-rays and post them as soon as I can.

Appt. with Dr. Nelson

Jeremy had his 6 week appt. post casts and the Dr. said he has wonderful looking hip. Jeremy is now able to do full activeties. yay!! We go back  March 8th.

My power point presentation for school



My storyboard

 I made a power point and storyboard presentation on perthes disease for school I thought I would share it. On the power point there is a video on the slide that says triple pelvic osteotomy the video should just start. I went more in detail on what Jeremy has gone through thus far. I hope everyone enjoys it!



My power point

and the casts are off.

 

Sorry it's been so long with an update we have been so busy. Jeremy had his casts removed Oct 10, when the casts were cut off Jeremy just could not stop peeling the dry skin off it was so funny. The first week was really hard for him he fell a lot. I felt so bad for him, he just cried said he didn't think he could do it but eventually he started walking better.I am just amazed at how well he is getting around. So far he is able to walk still has a slight limp but he is no longer in severe pain like he was before his surgery. We have Jeremy's 6 week  appt. with Dr. Nelson.  This year was Jeremy 1st Halloween without pain he had so much fun trick or treating.

And a New Day Will Dawn the surgery

So here I am, sitting in my son's hospital room, we are suppose to leave tomorrow for home. Jeremy had his surgery Tuesday 8/30/11 at 1:17 pm, and it has been a roller coaster since.

At check in

6:30 am: We all got up and got ready for the surgery Jeremy was able to have 7up until 6:25, he was excited about getting his leg fixed. We were running a little behind we are supposed to check-in at  8:25, we got here about 8:30 lol. We sat in the waiting room for about an hour, then we were called to the peds observation room.

Playing in the peds observation room

getting ready

Getting prepped for surgery: While we were in the peds observation room, the nurse got Jeremy ready for what was about to happen. Gosh we were in this area of the hospital for about 2 hours, then Dr. Nelson  came out talked with us and wrote a big YES on Jeremy's left hip.We met with the pain management team and they told us everything that was going to happen. Jeremy would be given an epidural for his pain, we were told that this is the best way to control pain for hip surgery. At 12:30 pm they rolled Jeremy back for surgery.

The surgery: I got a text from them surgery started at 1:17 pm Jeremy had  3 procedures done, triple pelvic osteotomy, tenotomy, and core decompression. Dr. Nelson came out and spoke with us at 3:00 and told us the surgery went wonderful and he only lost a little bit of blood, we could go back and see Jeremy when he wakes up.

in recovery room

The recovery room:   I tell you, my heart dropped when I saw him. Jeremy had just woken up screaming for both Ian and I. He was in so much pain. He was able to barely get out that he hates doing the splits and why is this happening to him. Tears where in my eyes, but I had to be Strong for him and tell him he was going to be OK.   I didn't like the recovery nurse at all, talk about a mean cold, nurse. I told her to do something for him he was hurting, she got nasty with me told me I could leave. I bit my tongue so I could stay with him. They were having trouble keeping his blood pressure up.They turned his epidural off to try and get his B/P back up.The nurse walked away to get something and Jeremy had a seizure, Ian and I told her but she told us we didn't know what we were talking about. Jeremy started to be in severe pain by this time and was screaming and arching his back and this nurse is just sitting there staring at him asking him where is the pain. So from about 4pm until 9pm we were stuck with this mean nurse and  Jeremy was miserable.

in his room

Jeremy's hospital room: At 9pm they finally decided Jeremy was stable enough  to go to his room. We get here and the nurses are so nice. Jeremy was very quiet for the majority of the night. Then next day he was in a lot of pain throwing up nonstop most of the day.

physical therapy

Physical therapy:   Dr. Nelson ordered physical therapy the very next day. Told us Jeremy could be discharged on the 1st. I was shocked that he said that. Jeremy wasn't holding anything down was in severe pain. The physical therapist came she is very nice, very patient., she told us the sooner we get Jeremy moving the quicker his recovery is. So we moved from the bed to the wheelchair and showed us how to get him to sit up. Jeremy started having high fevers. Later that night he got so hot that they had to do the cooling measures.

3 days later we were able to get him out of his room down to the cafeteria

last night there he is finally back to being Jeremy

 September 1st: It has been a nightmare today. Jeremy has been screaming all day about being in pain. We talked with the nurse and the child life specialist and we figured out Jeremy was having extreme anxiety about what is happening to him. He thinks his hip is dead, and that he will never walk again and the casts will be on forever. None of the pain relievers are working because he has so much anxiety. They ordered Valium for his anxiety and for his muscle spams he was having, OMG what a difference in him. He is now watching TV without crying, he is taking his medicine without a fight. We got him to learn how to move into the commode he even went pee. We even got him in his wheelchair and went for a walk down to the cafeteria, he tried to eat but nothing tastes good to him. Ian and I got him back into his bed just the 2 of us. Tomorrow we get to go home. We are all happy to go home. I know we are in for a crazy year. I hope Jeremy is able to handle what is about to come.