So here I am, sitting in my son's hospital room, we are suppose to leave tomorrow for home. Jeremy had his surgery Tuesday 8/30/11 at 1:17 pm, and it has been a roller coaster since.
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| At check in |
6:30 am: We all got up and got ready for the surgery Jeremy was able to have 7up until 6:25, he was excited about getting his leg fixed. We were running a little behind we are supposed to check-in at 8:25, we got here about 8:30 lol. We sat in the waiting room for about an hour, then we were called to the peds observation room.
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| Playing in the peds observation room |
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| getting ready |
Getting prepped for surgery: While we were in the peds observation room, the nurse got Jeremy ready for what was about to happen. Gosh we were in this area of the hospital for about 2 hours, then Dr. Nelson came out talked with us and wrote a big YES on Jeremy's left hip.We met with the pain management team and they told us everything that was going to happen. Jeremy would be given an epidural for his pain, we were told that this is the best way to control pain for hip surgery. At 12:30 pm they rolled Jeremy back for surgery.
The surgery: I got a text from them surgery started at 1:17 pm Jeremy had 3 procedures done, triple pelvic osteotomy, tenotomy, and core decompression. Dr. Nelson came out and spoke with us at 3:00 and told us the surgery went wonderful and he only lost a little bit of blood, we could go back and see Jeremy when he wakes up.
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| in recovery room |
The recovery room: I tell you, my heart dropped when I saw him. Jeremy had just woken up screaming for both Ian and I. He was in so much pain. He was able to barely get out that he hates doing the splits and why is this happening to him. Tears where in my eyes, but I had to be Strong for him and tell him he was going to be OK. I didn't like the recovery nurse at all, talk about a mean cold, nurse. I told her to do something for him he was hurting, she got nasty with me told me I could leave. I bit my tongue so I could stay with him. They were having trouble keeping his blood pressure up.They turned his epidural off to try and get his B/P back up.The nurse walked away to get something and Jeremy had a seizure, Ian and I told her but she told us we didn't know what we were talking about. Jeremy started to be in severe pain by this time and was screaming and arching his back and this nurse is just sitting there staring at him asking him where is the pain. So from about 4pm until 9pm we were stuck with this mean nurse and Jeremy was miserable.
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| in his room |
Jeremy's hospital room: At 9pm they finally decided Jeremy was stable enough to go to his room. We get here and the nurses are so nice. Jeremy was very quiet for the majority of the night. Then next day he was in a lot of pain throwing up nonstop most of the day.
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| physical therapy |
Physical therapy: Dr. Nelson ordered physical therapy the very next day. Told us Jeremy could be discharged on the 1st. I was shocked that he said that. Jeremy wasn't holding anything down was in severe pain. The physical therapist came she is very nice, very patient., she told us the sooner we get Jeremy moving the quicker his recovery is. So we moved from the bed to the wheelchair and showed us how to get him to sit up. Jeremy started having high fevers. Later that night he got so hot that they had to do the cooling measures.
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| 3 days later we were able to get him out of his room down to the cafeteria |
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| last night there he is finally back to being Jeremy |
September 1st: It has been a nightmare today. Jeremy has been screaming all day about being in pain. We talked with the nurse and the child life specialist and we figured out Jeremy was having extreme anxiety about what is happening to him. He thinks his hip is dead, and that he will never walk again and the casts will be on forever. None of the pain relievers are working because he has so much anxiety. They ordered Valium for his anxiety and for his muscle spams he was having, OMG what a difference in him. He is now watching TV without crying, he is taking his medicine without a fight. We got him to learn how to move into the commode he even went pee. We even got him in his wheelchair and went for a walk down to the cafeteria, he tried to eat but nothing tastes good to him. Ian and I got him back into his bed just the 2 of us. Tomorrow we get to go home. We are all happy to go home. I know we are in for a crazy year. I hope Jeremy is able to handle what is about to come.
